I still vividly remember that day—after a casual lunch with my mom, I headed to my routine optometrist visit. Typically a quick appointment, this one unexpectedly stretched over two hours. I thought choosing new frames would be the highlight, but little did I know that my life was about to change dramatically.
The Wake-Up Call: Understanding Symptoms and Seeking Help
Initially, the testing seemed like standard procedure. But my optometrist’s worried demeanor set off alarm bells. He suggested additional tests, casually mentioning they might not be covered by insurance. I shrugged it off, responding, “Sure, you only get one set of eyes!”
Afterward, he returned with urgent news: I needed to see a specialist. Confusion washed over me. I had always been far-sighted and had astigmatism, but I hadn’t expected anything serious. He mentioned I could potentially have a neurological disorder known as Idiopathic Intracranial Hypertension (IIH) and even advanced Papilledema, explaining how my daily headaches and dizzy spells—initially attributed to stress—were significant indicators.
Listening to Your Body: The Importance of Symptom Awareness
As I processed his words, I found myself reflecting on my lifestyle. The late nights spent perfecting ad campaigns and the lack of self-care. I was so busy creating my dream life, instead of actually living it.
The thought of losing my vision—the very tool I relied upon for work and life—was overwhelming. But instead of succumbing to despair, I vowed to confront this challenge head-on.
Taking Charge of My Health: Navigating Treatment
I soon found myself in the care of a dedicated team, including a neurologist and an ophthalmologist. Our journey together was filled with twists and turns, from lumbar punctures to monitor my cerebrospinal fluid levels to various medications, including Diamox. Unfortunately, my body rejected Topamax, but with careful adjustments and time, I began to see progress.
Each follow-up brought a mix of hope and fear, but in 2021, I received news that brought me to tears—I could keep my vision. My experiences began to shift my perspective; the late-night work sessions and material pursuits felt less essential than the simple joys of life.
Embracing a New Perspective on Life
The healing journey wasn’t merely about regaining my eyesight; it taught me invaluable lessons. I endured numerous medical tests and procedures, yet I came out stronger, with a renewed appreciation for life’s experiences. I started cherishing quieter moments—day trips to museums, brunch with friends, and leisurely walks with my dog.
This health scare instilled in me the belief that our well-being is our greatest asset. Remember, it’s crucial to prioritize your health and recognize the importance of listening to your body.
While I still have a busy work life, I’ve committed to living more fully—realizing that true wealth lies not in material possessions but in the richness of our experiences and connections.
In the end, the journey through IIH and Papilledema has shaped me into a more mindful, grateful individual. And as I navigate life’s ups and downs, I continually celebrate the beauty I’m privileged to see.

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