20%. That’s how much vision I had left two years ago.
Today was only my second ophthalmology appointment of the year, and if you knew what it took to get here — you’d cry.
I used to see neurologists, ophthalmologists, and neurosurgeons monthly, sometimes several times a month. My life was a constant stream of appointments, MRIs, MRVs, and lumbar punctures to drain excess cerebrospinal fluid.
We tried a cocktail of medications. Some were brutal — one drained my potassium levels and left me with daily neuropathy. On top of that, I faced sporadic blackouts, debilitating pain, and residual optic nerve damage.
And yet, I never lost hope.
Almost going blind, nearly needing brain surgery, and living with idiopathic intracranial hypertension (IIH) changed my perspective completely. Suddenly, the things I used to stress about — the materialistic nonsense, the daily minor annoyances — felt irrelevant. What should come first finally became crystal clear.
I’m beyond grateful for insurance and access to skilled specialists. It started with a routine eye exam where my optometrist spotted something off. From there, I worked with many incredible doctors, but my main neurologist and primary ophthalmologist were the real heroes. They guided me through dark, uncertain times and never let me lose hope.
Today, I cried when my ophthalmologist showed me progress photos of my eyes. I never thought I’d see this moment — honestly, neither did she. It’s a reminder that sometimes, miracles take work, persistence, and the right team by your side.
Now, when I wear my obnoxious Gucci frames, I smile. They were supposed to be my “last hoorah” frames — and yet here I am, seeing clearly and thriving.
This year threw more curveballs: COVID, reactivated mono, a cheating partner, minor neuro mishaps, and esophagus damage from the mono. And yet, I wake up every day grateful to see, breathe, and move. Every single day.
If there’s one thing I want anyone reading this to take away, it’s this: life is precious. Love yourself. Advocate for your health. Never skip your annual visits, especially for your eyes. It could literally save your life.


Leave a comment