brain health
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Beyond the Gucci Glasses: Living With IIH, Papilledema, and What Came Next
A personal story of living with idiopathic intracranial hypertension (IIH) and papilledema, navigating long-term neurological care, anemia, and a rare blood disorder while learning to live with ongoing health monitoring and uncertainty. Continue reading
anemia, brain health, chronic condition monitoring, chronic disease management, chronic health journey, chronic illness, health anxiety, healthcare, hematology, Idiopathic intracranial hypertension, iih, intracranial hypertension, intracranial pressure, invisible illness, iron deficiency, life, lumbar puncture, medical journey, MRI MRA MRV, neuro ophthalmology, neurological condition, neurological disorders, neurologist care, Neurology, ophthalmologist care, optic nerve swelling, papilledema, patient story, personal, rare blood disorder, thalassemia, vision health, women with chronic illness -
My IIH Journey: From Almost Losing My Sight to Gratitude and Perspective
20%. That’s how much vision I had left two years ago. Today was only my second ophthalmology appointment of the year, and if you knew what it took to get here — you’d cry. I used to see neurologists, ophthalmologists, and neurosurgeons monthly, sometimes several times a month. My life was a constant stream of appointments, MRIs, MRVs,… Continue reading
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Living With Papilledema and IIH: The Story Behind The Girl in Gucci Glasses
A personal story about living with idiopathic intracranial hypertension (IIH) and papilledema, navigating vision scare and diagnosis, and finding strength through chronic illness, recovery, and identity. Continue reading
and self-love through style, brain health, brain pressure disorder, chronic disease support, chronic headache, chronic illness, chronic illness journey, coping with illness, designer eyewear, empowering chronic illness narratives, eye health, fashion and identity, finding strength, Gucci glasses, health and wellness, health blog, Idiopathic intracranial hypertension, iih, IIH diagnosis, invisible illness, living with IIH, lumbar puncture experience, medical diagnosis story, medical fashion, Mental Health, MRI MRA MRV, neuro-ophthalmologist, neurologist care, optic nerve swelling, overcoming illness, papilledema, papilledema symptoms, patient story, personal essay, personal growth, rare disease, resilience, self-care, style as self-expression, vision health, vision loss anxiety, vision loss stories, wellness journey, women with chronic illness